Monday, July 14, 2008

Hi all,

We knew it would likely happen, but that doesn't make it any easier to hit road bumps. Beatrice’s nurse noticed a little murmur when she listened to her heart this morning and an echocardiogram confirmed that Bea has a small heart problem. A duct that should have closed at birth did not and as a result she is working too hard to circulate oxygen. The docs are putting her on a medication that may solve the problem. In the event that it doesn't, Bea will have surgery. It isn't open heart surgery, but it is heart surgery nonetheless. We'll know in the next 2-3 days whether this will happen.

She is still on the CPAP, has been given a little more oxygen, and is doing ok. Her red blood count is down a bit, which means she may need a blood transfusion in the next few days. As you can see from the photo, Bea is still under the bili lights for jaundice. Deep breath. All these things are within the norm for preemies.

So, a tough day for Team Beatrice (probably tougher on Mommy and Daddy than Bea, who is snoozing away in her isolette). As the docs promised, we have a long road ahead, even with Ms. Bea's valiant efforts.

-Carol (on behalf of Team Beatrice)

6 comments:

KB said...

Thanks for the updates! Bea is the youngest and smallest hero I've ever had...and definitely the strongest, too. Take good care.
Peace and love,
Kate Brayko

Sarah Smith said...

Look at that tummy time - nice work, Bea. I am so proud of you for getting into an isolette! That's a huge step. I hope to see you again soon, little one.
love,
Sarah

Unknown said...

Given the size of her parents' hearts, I'm pretty sure that lil' Bea's ticker is pretty darn strong. Keep fighting Bea! We love you Team Beatrice!

Bobby

JonathanBlog said...

Meredith and I have never rooted for anyone or anything as hard as we are for Team Beatrice. Go Team Beatrice!!!
Jonathan

niainportland said...

Team Bea: I'm a friend of your mom Louise, from PDX. L MAY stay w/ me in Aug while taking a class. She sent your blog to let me know significant possibilities exist for changes in plans. I read your words and gazed at the pix of this amazing family in tears. You are at once so brave and so incredibly helpless. The photo of dear Bea looking right at us says it all, to me.."you ain't seen nothin yet, guys!" You got it, dear little wrinkly Bea, with the tubes and tape and eye covers and machines...I am sure, we ain't seen NOTHIN', yet. Love to you all.
Louise's friend,
nia

Helena said...

I've never met you and only know your story through Sarah. We are sending lots of loving thoughts. Beatrice looks like a fighter. In the earlier pictures her eyes are very alert despite the difficulties she is going through. This sounds wierd, but I seriously have a good feeling about her. I think she's going to be a thriving little girl someday. I really do.